ICOMBO partners
ICOMBO partners with like-minded organisations, who work for the betterment of multiple birth families.
We invite other organisations to connect with us on our journey.
Baby Loss Awareness Alliance
The Baby Loss Awareness Week Alliance are committed to raising awareness of pregnancy and baby loss, providing support to anyone affected by pregnancy loss and the death of a baby, working with health professionals and services to improve bereavement care, and reducing preventable deaths.
EFCNI
EFCNI , the European foundation for the care of newborn infants, is a pan-European organisation and network that represents the interests of preterm and newborn infants and their families. Their vision is to ensure the best start in life for every baby.
ECFNI is working to reduce preterm birth rates, ensure the best possible treatment, care and support and to ensure the long-term health of preterm infants and newborns with illnesses.
Footprints Baby Loss Twin & Triplet Support
Footprints Baby Loss Twin & Triplet Support is a bereavement charity that provides vital support to parents and families who experience the death of one or more of their twins or triplets before, during or after birth. We are a UK based charity but we support people from all over the world.
Losing a baby from a twin or triplet pregnancy brings its own unique heartbreak and challenges. Footprints Baby Loss offers specialist support that understands the complexities, emotions and needs that come with multiple loss. As well as supporting families who lose all of their babies, we’re here to support families through the mixed feelings of grief and care when one or more babies survive
‘We are a charity run by bereaved parents, for bereaved parents.’
Our support is provided by those who have had first hand experience of twin or triplet loss. We understand the value of having a safe space to be able to communicate with someone who has been through something similar, and provide a kind, caring and inclusive approach with our bereavement services.
We provide bereavement support in the form of befriending, online support groups and a private online community group as well as twin and triplet loss specific information and resources. You can find out more details on our website.
GLANCE
GLANCE is a global network to represent the interests of babies born too soon, too small and too sick, and their families. It aims to improve newborn and maternal health worldwide, ensure nurturing care in all settings, and enable every girl, woman and parent to make well-informed choices and decisions during pre-conception, pregnancy and birth as well as during follow-up and continuing care after discharge from hospital.
HMBD
Human Multiple Births Database collects the annual number of twin births and twinning rates for countries with reliable statistics, providing long data series as early as the mid 19th century for some countries . It also collects statistics for triplets and other higher order multiples wherever possible.
International Vanishing Twin Syndrome Foundation
The IVTS Foundation is dedicated to advancing research, education, and support for individuals and families affected by vanishing twin syndrome. The foundation aims to: promote research and awareness of VTS; provide education and resources; support families and individuals; advocate for improved medical guidelines; and bridge the gap between research and practice by developing practical tools for healthcare institutions and patient advocacy groups.
TAPS Support
The TAPS Support Foundation is based in the Netherlands. They passionately support research into Twin Anemia Polycythemia Sequence (TAPS) and related conditions, as well as supporting patients who are diagnosed with this disease.
TTTS Foundation
The Twin to Twin Transfusion Syndrome Foundation is an international nonprofit organisation solely dedicated to providing immediate and lifesaving educational, emotional and financial support to families, medical professionals and other caregivers before, during and after a diagnosis of TTTS including TAPS, SIUGR and TRAP. They are passionately dedicated to saving the babies and providing NICU, special needs and bereavement support to families suffering immense loss as well as furthering research into monochorionic placentas so that all babies can come home with their families and be together the way twins, triplets and more are meant to be.